PROJECT CHANGE is a 501 (c) (3) non-profit organization that will raise money and community awareness to help children and people affected with Fibrous Dysplasia. 

CHANGE represents our ability to give back to the community, empower hope, inspire others, come together for a cause, and rally around these children’s and families affected by this condition.

What is Fibrous Dysplasia?

Fibrous dysplasia is a rare bone disease in which some bones grow differently than non-impacted bones. FD happens when abnormal fibrous (scar-like) tissue replaces healthy bone. The fibrous tissue weakens the bone over time, which can lead to fractures (breaks) and misshapen bones.


  • Educate the community on the disease to help raise awareness and support
  • Pay for medical expenses for children requiring surgery but are unable to receive it due to medical expenses

  • Support our fibrous dysplasia community to meet each other in person annually so they may get to know each other 

  • Donate to a research foundation specifically for fibrous dysplasia