PROJECT CHANGE is a 501 (c) (3) non-profit organization that will raise money and community awareness to help children and people affected with Fibrous Dysplasia.
We decided on this name because CHANGE represents the facial changes that Cash and other children endure during this disease as the diseased bone grows unpredictably and there is no cure. The current management is surgery and only when medically necessary as operations tend to disturb the FD and cause it to become more aggressive.
Our goals at CHANGE are to:
- Educate the community on the disease to help raise awareness and support
- Pay for medical expenses for children requiring surgery but are unable to receive it due to medical expenses
- Support our fibrous dysplasia community to meet each other in person annually so they may get to know each other
- Donate to a research foundation specifically for fibrous dysplasia
It also represents the CHANGE in people’s perception of children and adults who have this disease by creating community awareness and education, which helps with acceptance and empathy in our community for these children.
CHANGE represents our ability to give back to the community, empower hope, inspire others, come together for a cause, and rally around these children’s and families affected by this condition.
CHANGE creates a standard of acceptance, love, and hope for all, regardless of circumstance, disease, or any other uncontrolled influence.
Project CHANGE will host many events throughout our community to raise awareness and donations to this charitable cause. All donations to CHANGE will be to CHANGE’s 501 (c) (3)